|aA face for Picasso :|bcoming of age with Crouzon syndrome /|cAriel Henley
250
|aFirst edition
260
1
|aNew York :|bFarrar Straus Giroux,|c2021
300
|a378 pages ;|c22 cm
504
|aIncludes bibliographical references
520
|a"A YA nonfiction story about Ariel and her twin sister's experience living with Crouzon Syndrome"--|cProvided by publisher
520
|aAt only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Here Ariel explores beauty, identity, resilience-- and the strength it takes to put your life, and yourself, back together time and time again. -- adapted from jacket
521
|aAges 12-18|bFarrar Straus Giroux Books for Young Readers
521
|aGrades 10-12|bFarrar Straus Giroux Books for Young Readers
＂A YA nonfiction story about Ariel and her twin sister’s experience living with Crouzon Syndrome＂--]cProvided by publisher.
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